
There are days when i just cant find the words to express myself. Whether thats due to MS i just dont know.
Its as though i have some kind of word blindness at times, or maybe better explained as knowing that i have the word filed away somewhere in my brain, but it takes a huge amout of energy to rummage through the cabinet of my brain to find it.
If i do decide to invest the energy required to seek the required word out then the time it takes to do so leaves the person i am talking to glazed over or unable to resist the temptation to jump in.
There are times when i just dont want to try that hard, so i use the first word that comes into my head, often with humourous results.
With my partner its not an issue as she understands the problem i have but we do have what would appear to be the most Bizarre conversations to the outsider!
" im going to put the dinner back in the .......(now what cabinet is that word stored in....damm its taking too long and too much energy.. come on any word will do.....) washing machine! lol!!!
As frustrating as it is , it does make us laugh often.
However its not always words for inanimate objects that escape me.
I too have difficulties with constructing concise sentances. Made all the more difficult if i am emotionally engaged with what i want to say. Hence my tendancy to ramble and babble at times.
But harder than that is formulating a written sentance that has emotional significance.
None of these difficulties are constant, yet another thing that varies on a day to day basis.
Some days i am able to communicate with what seems by comparison razor sharp sentences which are relative, accurate and concise.And the sentance comes to me in lightening speed and reminds me of how my brain synapses used to fire.
But
today i have to write a very important letter.
which is why i am writing this blog requesting some help form those who have a greater eloquent capacity than i do today!!
so,some background to the letter i must write.
Due to my health conditions i have been told by both my medical consultants that they support my ill health retirement.
I have receieved a report from my Neurologist as a part of the process of persuing ill health retirement.
I reviewed it and there are some inaccuracies which i have addressed in writing and these have been ammended, and i have also raised my concern with the final sentence.
However, the neurologists closing statement is still causing me concern that i feel i must address. And it is formulating a written response to this that i am having great difficulty with.
The criteria that i must meet for ill health retirement is...
"unable to carry out their normal occupation or any other occupation which the Trustees could reasonably expect the employee to undertake, whether with the Company or not; and that the condition is permanent – i.e. the condition will prevent, on the balance of probability, a resumption of normal occupation in any period prior to normal retirement age"
my neurologists closing statement
" I would suspect that the physical difficulties caused by* make employment in the near future in any capacity very difficult and i would support her early retirement"
ok so, the bit that makes me edgy and that i feel i want to address is the word NEAR.
The use of "near" seems misleading to me.
My current symptoms mean i am incapable of working ,these symptoms are not likely to improve.
As for the future both my health conditions are only likely to at best stay as they are currently or get worse. ( i ran this by my GP today and she agreed that his was the case)
I have requested that the consutant remove the word "near" as i thought it was misleading, but he has chosen not to.
As you can imagine the implicaions of ill health retirement are emotionally challenging and i am worried that the pension trust will read the statement and interpret the use of "near", to mean that i am not capable now, or in the near future but that i may be in the period of time between near future and my normal retirement age( which is a long way off!)
How does this closing statement read to you?
Do you think i am worrying unnecessarily?
should i address this again, and if so what should i say?
please contact , your help would be much appreciated
Recent Comments
lollipop said (2 months ago)
Firstly, thank you for having the same problem as me with mixing up your word's, and I agree it can be very very funny at times. Even when you have the word in your head but out pop's something completly different. I fully understand what you are saying about the word 'NEAR'. He's possible covering himself, as with MS you can go in to total remission, I know of it happening. Six months ago I wouldn't go out unless I was in a wheelchair, at the moment I'm hardly using the wheelchair. Not because I've gone into remission but just that my elec wheelchair is knacked and it could be 12 months before I get a replacement. By the end of the day I am totally knackered myself so it's early nights for me. What does the consultant who you see about you back say? Would this support you claim on its own?
saltpye3 said (2 months ago)
Niky I'M SORY THIS IS BRIEF but I AM WRIting from York and dont have voice recognition sftwre but I feel the most important part of the closing setence is, 'I support her early retirement'. When I WAS going through the same thing the CAB HELPED ME GREATLY AND i SUGgest you get in touch with your local CAB. love and Light Charlie xx
The Wild Norseman said (2 months ago)
My dearest Jo asked me to come over and offer my assistance to you, moonwolf. If it's not too much trouble, you can email me at tw.norseman@gmail.com and I'll take as much time and attention to detail as you need. More specifically, however, I would wonder why he won't change the wording; even simply striking the word out entirely would address your concerns, I'd imagine. Maybe the near future is all a physician is willing to make a statement about, even though the requirements say that the disability must be permanent. Another suggestion is to contact other physicians and ask if this is a standard way of phrasing things and/or contact a person who makes these kinds of decisions; perhaps they can put your fears to rest. Anyway, I'm always glad to help; I'm just an email away.
jojo said (2 months ago)
I like giving up and making up words...I had been trying to find the socially acceptable way to say sorry I can't find that word right now. Atleast your way is funny.
jojo said (2 months ago)
are you actually working? The neuro seems to have covered it but it sounds like your gp has your back. Are you writting a letter to appeal to the courts?
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moonwolf said (2 months ago)