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My oh my myelin… Posted 2 months ago
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My vision has been deteriorating so I saw the Ophthalmologist yesterday. Optic Neuritis. Called my Neurologist who recommended a Solumedrol treatment. So, here goes the home health, insulin, eye patches and a basketball face all over again. Arrrgggghhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!!!!!!WTF?

Pardon my insinuated language but I am me and me is pissed. 3 Tysabri Infusions and a flare up is not what I expected. Between all the funky stuff my bladder has been up to, my spasming legs….I think my body is way out of line with it’s myelin attacking cells. I am upset but trying to keep my chin up. It is not the end of the world right?


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jojo said (about 1 month ago)
I cant take the steriods as I am allergic. I am having legs spasms in my left leg and my ankle appears to be permanently swollen. I am unsure if I have even come out of the last relapse or if the disease is progressing. Kinda freaked, but since none of us chose it, I think faith and attitude are my best bets right now. I even read that spirituality is key to a maintenance and recovery.

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